Realizing Benefit Sharing: Is there a Role for Ethics Review?

نویسندگان

  • Doris Schroeder
  • Eugenijus Gefenas
  • Roger Chennells
  • Veronique Fournier
  • Dafna Feinholz
  • Giorgio Sirugo
چکیده

1 Abstract The donors of human genetic resources deserve benefits in return for their contribution to scientific research. In the context of developing countries this claim holds as a matter of justice. But how can this demand be realised and implemented? This chapter looks at the role of ethics review as a possible benefit sharing mechanism. In particular the promising role of research ethics committees in monitoring the Declaration of Helsinki‘s post-study obligations is considered. However, a range of obstacles are identified, which would have to be overcome before ethics review could reliably achieve justice for the donors of human genetic resources in developing countries. These issues are addressed in specific recommendations. The Chapter 8 Realizing Benefit Sharing: Is there a Role for Ethics Review?

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تاریخ انتشار 2013